Originally published 03/25/2013
Rebecca Skloot is the author of “The Immortal Life of Henrietta Lacks.”LAST week, scientists sequenced the genome of cells taken without consent from a woman named Henrietta Lacks. She was a black tobacco farmer and mother of five, and though she died in 1951, her cells, code-named HeLa, live on. They were used to help develop our most important vaccines and cancer medications, in vitro fertilization, gene mapping, cloning. Now they may finally help create laws to protect her family’s privacy — and yours.The family has been through a lot with HeLa: they didn’t learn of the cells until 20 years after Lacks’s death, when scientists began using her children in research without their knowledge. Later their medical records were released to the press and published without consent. Because I wrote a book about Henrietta Lacks and her family, my in-box exploded when news of the genome broke. People wanted to know: did scientists get the family’s permission to publish her genetic information? The answer is no.
- Support grows for Smithsonian museum of women’s history
- History Lesson: How the Democrats pushed Obamacare through the Senate
- Oldest women’s college in US – Wesleyan College in Macon, Georgia – seeks to atone for Ku Klux Klan’s legacy
- Ancient Egyptian Writing: New Symbols Reveal Development Of Hieroglyphics
- Dr. Suess museum chided for failing to address head-on his racist statements during WW2
- Lonnie Bunch says the nooses found at the Smithsonian recently show why black people cannot get over the past
- Andrew Bacevich bemoans the loss of authority of historians
- It’s Time for Historians of Slavery to Listen to Economists
- Researcher: "Actually, Yes It Is a Discovery If You Find Something in an Archive That No One Knew Was There."
- The Trump team is obsessing over Thucydides, the ancient historian who wrote a seminal tract on war